Calendar An icon of a desk calendar. Cancel An icon of a circle with a diagonal line across. Caret An icon of a block arrow pointing to the right. Email An icon of a paper envelope. Facebook An icon of the Facebook "f" mark. Google An icon of the Google "G" mark. Linked In An icon of the Linked In "in" mark. Logout An icon representing logout. Profile An icon that resembles human head and shoulders. Telephone An icon of a traditional telephone receiver. Tick An icon of a tick mark. Is Public An icon of a human eye and eyelashes. Is Not Public An icon of a human eye and eyelashes with a diagonal line through it. Pause Icon A two-lined pause icon for stopping interactions. Quote Mark A opening quote mark. Quote Mark A closing quote mark. Arrow An icon of an arrow. Folder An icon of a paper folder. Breaking An icon of an exclamation mark on a circular background. Camera An icon of a digital camera. Caret An icon of a caret arrow. Clock An icon of a clock face. Close An icon of the an X shape. Close Icon An icon used to represent where to interact to collapse or dismiss a component Comment An icon of a speech bubble. Comments An icon of a speech bubble, denoting user comments. Comments An icon of a speech bubble, denoting user comments. Ellipsis An icon of 3 horizontal dots. Envelope An icon of a paper envelope. Facebook An icon of a facebook f logo. Camera An icon of a digital camera. Home An icon of a house. Instagram An icon of the Instagram logo. LinkedIn An icon of the LinkedIn logo. Magnifying Glass An icon of a magnifying glass. Search Icon A magnifying glass icon that is used to represent the function of searching. Menu An icon of 3 horizontal lines. Hamburger Menu Icon An icon used to represent a collapsed menu. Next An icon of an arrow pointing to the right. Notice An explanation mark centred inside a circle. Previous An icon of an arrow pointing to the left. Rating An icon of a star. Tag An icon of a tag. Twitter An icon of the Twitter logo. Video Camera An icon of a video camera shape. Speech Bubble Icon A icon displaying a speech bubble WhatsApp An icon of the WhatsApp logo. Information An icon of an information logo. Plus A mathematical 'plus' symbol. Duration An icon indicating Time. Success Tick An icon of a green tick. Success Tick Timeout An icon of a greyed out success tick. Loading Spinner An icon of a loading spinner. Facebook Messenger An icon of the facebook messenger app logo. Facebook An icon of a facebook f logo. Facebook Messenger An icon of the Twitter app logo. LinkedIn An icon of the LinkedIn logo. WhatsApp Messenger An icon of the Whatsapp messenger app logo. Email An icon of an mail envelope. Copy link A decentered black square over a white square.

Campaigner became activist, academic and speaker after dementia diagnosis

Kate Swaffer
Kate Swaffer

LAST week it was revealed that nearly two-thirds of people feel a dementia diagnosis would mean their life was over.

Kate Swaffer was more or less told just that when she was diagnosed eight years ago.

The Australian mum-of-two was advised by medics to give up her job, put an end to her studies, get her affairs in order and enjoy the time she had left.

Kate couldn’t think of anything worse. Instead, the 57-year-old has become a prominent dementia campaigner who believes her symptoms should be treated as disabilities that can be dealt with.

She’s now an activist, an academic, an international speaker, a published author and a PhD student – not bad for someone who was given such a grim appraisal.

Kate will visit Edinburgh next month to speak at a Global Dementia Conference hosted by Alzheimer Scotland.

She said: “I considered what support I would have been offered had I been diagnosed with a stroke rather than dementia and realised there could be life after dementia so long as I treated the symptoms as disabilities to be supported.”

Kate, who was a regional manager in health care when she was diagnosed, says family, friends and dementia care professionals can positively support people post diagnosis on how to live beyond dementia. She has a blog that’s read by thousands every day and also wrote a book earlier this year, which she called What Happened to My Brain?: Living Beyond Dementia.

Kate initially thought the symptoms she was experiencing – acquired dyslexia and short and long-term memory loss – were side-effects from brain surgery.

So she was shocked to be told she had semantic dementia, a very rare type of frontotemporal dementia. In layman’s terms, it’s a progressive disorder affecting the part of the brain that controls behaviour, language skills and movement.

“Early symptoms include difficulty finding the correct word, no longer understanding what the word means and difficulties recognising objects,” she said.

Kate’s husband Peter Watt and their sons, Matthew, 26, and Charles, 25, have been by her side throughout.

Despite her accomplishments, Kate still encounters a stigma.

“I feel those of us willing to speak publicly are often only used in marketing campaigns but not included fully.

“Scotland, I believe, has led the world as far as fuller inclusion.”

Alzheimer Scotland’s flagship annual conference takes place at the EICC on June 3, attracting 600 delegates from around the world.


READ MORE

Facing Dementia Together: Lovingly crafted scrapbook helps stimulate conversation

Phone game helps experts tackle dementia